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@lena0825

Thank you. I needed this post right now. My husband's Lewy Body Dementia has progressed to the point where his short-term memory is barely there. He also has issues processing what he sees even though he has 20/20 vision (it's visual brain dysfunction). And he has difficulty processing what he hears and trouble expressing his thoughts. His execution functions are practically all gone as well. He has Capgras syndrome with many mild (for now) delusions / hallucinations. His neurologist says he is maxed out on the cognitive and delusion / hallucination medicines: 25mg Seroquel (quetiapine), 34mg Nuplazid and 33mg Rivastigmine patch as well as 50mg carbido/levodopa (he has bilateral hand tremors). Increasing or adding any of the cognitive or carbido/levodopa would/could increase the delusions/hallucinations and/or possibly make them dangerous.

I think all of your suggestions, especially compliments and thanks from me will go a long way to easing both his and my anxiety.

So, thank you for your post.

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Replies to "Thank you. I needed this post right now. My husband's Lewy Body Dementia has progressed to..."

Thank you for all the details about your husband's symptoms. Our spouses share many of the same symptoms, so I know you are traveling a tough journey...just like so many others in this group. This constant source of knowledge that is not found in textbooks or even in research studies has been invaluable for all of us. Perhaps the best part is knowing that at any time of the day, we can share our hopes, frustrations, fears, successes and failures and find acceptance along with practical, helpful information. I am grateful for this group.

@lena0825 My husband appears to be at the exact same stage as yours - even the medications & dosages. Neurologist had explained it would reach this point eventually.

All we can really do is stay in the moment with them & make those moments as loving, beautiful & peaceful as possible for ourselves & them.