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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 1 hour ago | Replies (6909)Comment receiving replies
My name is Margo. I am 63 years old and have been suffering from Burning Mouth Syndrome for about a year and a half. For those of you who have never heard of this, it literally feels like I burned my tongue and roof of my mouth on something scalding. It gets worse as the day goes on and by night, my mouth and tongue are throbbing. I have seen a dentist, oral surgeon and my primary care doctor. The dentists have heard of this syndrome, but aren't sure how to treat it. I have been treated for thrush with a mouth rinse, and with gabapentin, which did nothing. My doctor had never heard of this, and told me it was a tooth rubbing on my tongue! I am so frustrated, as because doctors are unfamiliar with this, they show no interest in helping me to treat it. It is terribly annoying. It helps to chew sugar-free gum, which I do frequently. I feel so alone in this. I don't know if I'm in the right group. Has anyone had any experience with this?
Replies to "My name is Margo. I am 63 years old and have been suffering from Burning Mouth..."
Hi Margo. My name is Scott and I’m a 55 year old male. I’ve been suffering with burning mouth syndrome for 3 years. I’ve been to the dentist, oral surgeons, endocrinologist, ENT docs, primary health physician, neurologist and two different t Oral and Maxillofacial doctors and no one has been able to give me any relief. I’ve tried many different medications but none have worked and I’m extremely frustrated. If you have found any relief or doctor that has helped you with a cure or any remedy to help with your quality of life, please share the information. Thank you!!
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@river19 Welcome to Mayo Clinic. We are not medical professionals, but patients, family members and caregivers who share our experiences and offer support to others also on their health journey.
It must be very uncomfortable to be dealing with this Burming Mouth Syndrome. Here is an article published by Mayo Clinic about this condition: https://www.mayoclinic.org/diseases-conditions/burning-mouth-syndrome/symptoms-causes/syc-20350911
There are many contributing factors to consider. I hope you notice there are possible treatments and ideas here, that you can look in to. Are you near a Mayo Clinic campus, that you could check in with them? Campuses are in Rochester [MN], Jacksonville [FL], and Phoeniz [AZ]. If that is not feasible, perhaps there is a large teaching hospital or university hospital you can go to? For an appointment, https://www.mayoclinic.org/appointments.
Will you tell me more about your situation after you have read the article from Mayo, please?
Ginger