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Starting chemo for ovarian cancer for the second time.
Gynecologic Cancers | Last Active: Jan 28 9:26am | Replies (27)Comment receiving replies
I had 3 rounds of chemo prior to having a total abdominal hysterectomy, breezed through it. Had 3 more rounds after surgery…..felt horrible! Like you, could barely make it to the bathroom, barely took a 1 minute shower due to shakiness & weakness, no appetite. After speaking with my oncology RN, she told me that side effects tend to get worse the more have. Thanks for telling me that upfront, I was about to go to the er!! Lasted almost a week. Had CT scans in Dec, all clear & doctor said I didn’t need maintenance. Recently repeated CA125 & it jumped to 162 so he ordered a pet scan scheduled for 1/31. I’m a wreck!!! Prayers to all dealing with this horrible beast! 🙏
Replies to "I had 3 rounds of chemo prior to having a total abdominal hysterectomy, breezed through it...."
Please try to relax, CA125 can rise when your not feeling well too. My Dr. told me of a patient who had high ca125, and next couple days, proved positive for a virus. A month later the numbers were back down. It’s so not fare, the anxiety can make you sick enough in itself. I usually try to walk it off, they kind of screwed me there with the neuropathy, I’ll do what i can when I can. I feel for you. My first checkup is coming soon, not sure of maintenance drug if any. No mutations that i know of so far.
A part of me just wants to stay ignorant and carry on with where i am. Hang in there, hope it’s just a bug or virus, hugs
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It’s so scary. I had the PET scan last fall, several hot spots. (Plain CT did not show them at all.) Scheduled for more debulking surgery 12-1-23. They took one look, decided there was too much cancer, closed me back up. But they are willing to do another 6 cycles of chemo.
We have to be brave. When I feel like melting Jell-O, I remind myself that I don’t want my children to remember me like this. Be brave, be sharp, be interested, commit to making a difference.