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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 13 hours ago | Replies (7049)

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@faithgirl30

Hi everyone! I just wanted to introduce myself and say Hi!

My name is Melanie and I’ve lived with chronic pain for last 5 years or so. I’ve undergone 5 spinal neck surgeries in the last 4 years, the last of which was October 2019. I am now fully fused between C2-T2. My first surgery involved 2 artificial discs which failed. I’ve had a spinal cord stimulator implanted, which didn’t help, so it was removed in my last surgery. I have a fantastic pain specialist and spinal surgeon who coordinate care together, but they agree that I will probably live with chronic pain the rest of my life. I lost a lot of neck motion in the last 2 surgeries and live with chronic daily headaches as a side effect of the added force being exerted at the base of my skull. We are planning on a transition from high dose dilaudid to suboxone in the next few months. Few people appreciate or understand how draining chronic pain can be and how it limits activities of daily living.

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@faithgirl30 Why the switch to sunk one?

@faithgirl30
Hi Melanie, and welcome to Connect. I am sorry about your situation. Yes, I know what you are saying about chronic pain, not many people have any idea. I was one of those before my wife's peripheral neuropathy came in to our lives 6 years ago. It has taken over our lives to some extent, and it does seem to be a permanent fixture in our lives now. You are one of a growing list of people I have heard say that their pain stimulator does not work. May I ask you to elaborate on your experience with one? What kind was it, when did you have it put in and did it work for a while and then quit, etc. We had been interested in considering one for my wife but not it seems like about 3/4's of them end up more or less useless. Best, Hank

@faithgirl30 Amen, sister