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Dosage Adjustments On Tymlos Pen
Osteoporosis & Bone Health | Last Active: Oct 1 7:20pm | Replies (127)Comment receiving replies
@bkb the time limit was lifted on Forteo, and should be lifted soon for Tymlos. Those of us who started at a low dose have trouble determining how long we have been on it! I did Tymlos in June 2021, then restarted at a low dose Oct. 2021. and by Dec. (maybe, can't remember) was on 6 or 7 "clicks" out of 8. I just stopped Tymlos last month, so over 2 years.
One issue it that it tends to stop building bone. For me, tests showed that around 18 months. But it maintains. If I cannot tolerate anything else I may try to stay on it!
@jmla I am not sure if my spine was -3.3 or -3.6, and can't access the scores at the moment. However I have had 7 spinal fractures! I hope you haven't had any!
Replies to "@bkb the time limit was lifted on Forteo, and should be lifted soon for Tymlos. Those..."
@windyshores I think you said a few of your fractures were from trauma. I hope they’ve all healed and that you’re doing okay. You sound like an incredibly strong person. I also hope the Evenity is working for you.
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Knock on wood I have not had any fractures yet that I know of. My bone quality (as well as bone mineral density) has been tested, and it’s in the osteopenia range (but headed toward osteoporosis, which is why my doctor put me on Tymlos). He said that some people find the efficacy wanes after 18 months, and for some it’s 2 years. We will have to see how long this works for me. I think if it’s more like 18 months, he will take me off of it and then have me start it again later on. I’m finishing my 2nd month and I’m up to 60mcg. 🙂 I’ll stay at 60 until my 3-month blood test and see where things stand. Fingers crossed that it’s working.