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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 18 hours ago | Replies (7049)Comment receiving replies
@txsmo
Hi Susan, back on 9/28 you mentioned that you were only being treated with gabapentin, but here you say you are taking opioids. I am confused as gabapentin is not an opioid.
I remember you talking about your pain before when we chatted and I can't believe how much hell you are going through with all of this. I know you said you were on bisphosphonates for your osteoporosis. Does that add to your other pain or do you tolerate it okay? I'm sorry your stimulator is not helping you. It seems I am hearing more and more people say that about their stimulators. My wife has pretty much decided not to get one at this point, having heard so many failure stories.
I hope you can find someone good to help you with getting a pain pump put in. Sound like a much better way to get your pain dealt with in a much more methodical manner. I wonder if you ever found out what you wanted to know about ketamine? Your whole story really saddens me. You said you were diagnosed with CIDP 6 years ago. I wonder whether it come on you all at once or was it was gradual. I know when I found out I had MS it was about as sudden as it could have been, literally hit me all at once on the 4th of July one year. Best to you, Hank
Replies to "@txsmo Hi Susan, back on 9/28 you mentioned that you were only being treated with gabapentin,..."
Hand, I get an infusion of Reclast once a year. I've had four infusions so far and skipped last year as you cannot get them forever since there is a risk of jaw or hip fracture. It strengthened my bones but does not correct the damage already there. I could not find out any information about ketamine infusions for pain. I live in a suburb of Dallas/Ft. Worth so if it could get done I am sure I could have found out someone who was doing it for pain. It took me four hospital admissions over 13 months to be diagnosed with CIDP. It is a vwry rare disease. I'm sorry about your MS. I hope you have found neurologist with a good treatment plan. Regards, Susan
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Hi Hank, I am still taking gabapentin for neuropathy that is a residual of the CIDP. I know gabapentin is not an opiod. I take opiods three times a day. The pain relief only seem to last 2 to 3 hours. I am probably going to have C-4,5,6 fusion. When I see the orthopedic surgeon in a few weeks I am going to ask him about a pain pump. Another member of this group wrote me yesterday and told me about her pump and I was pleased to hear about it. I am at the point where I should be enjoying life but I dread getting out of bed every day.