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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 18 hours ago | Replies (7049)Comment receiving replies
Hi to all! My name is Susan and I have multiple autoimmune diseases in addition to chronic back pain due to multiple fractures from osteoporosis. I have been paralyzed by CIDP twice in the last seven years and both times rehabbed to be able to walk.. I now use a walker. I have a nerve stimulator implanted which doesn't seem to help at all. I control my pain with opioids (which I despise). I am looking for information on pain pumps. I feel like that is my last option.
Replies to "Hi to all! My name is Susan and I have multiple autoimmune diseases in addition to..."
@txsmo
Hi Susan, back on 9/28 you mentioned that you were only being treated with gabapentin, but here you say you are taking opioids. I am confused as gabapentin is not an opioid.
I remember you talking about your pain before when we chatted and I can't believe how much hell you are going through with all of this. I know you said you were on bisphosphonates for your osteoporosis. Does that add to your other pain or do you tolerate it okay? I'm sorry your stimulator is not helping you. It seems I am hearing more and more people say that about their stimulators. My wife has pretty much decided not to get one at this point, having heard so many failure stories.
I hope you can find someone good to help you with getting a pain pump put in. Sound like a much better way to get your pain dealt with in a much more methodical manner. I wonder if you ever found out what you wanted to know about ketamine? Your whole story really saddens me. You said you were diagnosed with CIDP 6 years ago. I wonder whether it come on you all at once or was it was gradual. I know when I found out I had MS it was about as sudden as it could have been, literally hit me all at once on the 4th of July one year. Best to you, Hank
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@txamo It sounds like you have been through a lot of medical issues, and probably, like so many of us feel, just one would be enough!
Within this discussion group on chronic pain, if you go back to the index of conversation, please scroll down to one that is titled "I have a pain pump..." Right now I am on my tablet and cannot paste the address in here for you to go right there.
May I ask what opioid you are on, and for how long? Has your pain management team been able to assist you on a pain pump, and how to titrate off your current pain meds?
Ginger