← Return to Merkel Cell Carcinoma: I'd like to hear from others

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@penlandtr1

Hi, I was first diagnosed with MCC 2 years ago with a tumor in my right forearm. All the test indicated that they got all of the cells that were affected by the cancer. Went 2 years and 1 week when a mass the size of a golf ball appears 🤔 in my R arm axillary lymph nodes. Approximately 6 lymphnodes are 3 cm or larger. Biopsy confirmed metastatic merkel cell carcinoma. I did 25 radiation therapy the first time. Starting 30 treatments on the 18th of this month. It's been a lot harder this time as it was made really clear what I was dealing with the first go round I'm finding it a lot harder to understand what is happening and where I am going from here. I got lab results today that have Ki67 MIB1 SQ Positive 80-90 %
Feeling a lot of anxiety and scared. MCC is so rare it's hard to find information and , I've found even harder to understand. That's why I'm on this group. It helps me to know other people's experiences and strengths. I was you all the best in your journey. Traci

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Replies to "Hi, I was first diagnosed with MCC 2 years ago with a tumor in my right..."

Traci, my wife and I are hoping the very best for you. After recently completing 25 radiation treatments to the left side of my face I most certainly empathize with you having to endure another session of radiation.
I don't know what your lab results reveal but assume they are what is causing your anxiety. In my almost 82 years of life, I have found words provide little comfort and that only leaves a sincere hug, this is what my wife and I send to you.