Replies to I have all the symptoms of ACNES , basically neuropathic pain, as you indicated. Upon movement…

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Chronic Pain | Last Active: 5 days ago | Replies (6794)

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@horthog

I have all the symptoms of ACNES , basically neuropathic pain, as you indicated. Upon movement etc it can be a 10. The pain has not gone away, I have had it for a month but I cannot get a DR to see or examine me so I have to try and tell them over the phone what i think it might be and what medication they should prescribe. Nothing really relieves it ad they will not prescribe any strong analgesia. Can I ask, are people led to believe that we have a great health care system in the UK? because if so then you are truly being lied to, it is horrendous and they do not care whether you live or die.

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Replies to "I have all the symptoms of ACNES , basically neuropathic pain, as you indicated. Upon movement..."

Colleen Young, Connect Director | @colleenyoung | Oct 29, 2020

Hi @horthog, I'm indeed sorry that you are not getting the care you seek. You may wish to consider seeking health services from Mayo Clinic in London UK. Located in London, Mayo Clinic Healthcare offers an array of services, including a range of comprehensive health assessments, specialist consultations, concierge medical programmes and second opinion services. We offer expert care to our patients in London and also provide a gateway to a variety of highly skilled specialists and services in the United States. See more here: https://www.mayoclinichealthcare.co.uk/

You may also wish to talk with other members who have ACNES here:
– ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome https://connect.mayoclinic.org/discussion/acnes-abdominal-cutaneous-nerve-entrapment-syndrome/

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Hank | @jesfactsmon | Oct 30, 2020

@horthog
My heart goes out to you for the awful predicament you are in. To be in so much pain and not be able to get any professional help? Sounds bleak.

Yes, most people here don't have much knowledge about things outside the US. I also think our news media blocks info they don't want us to hear and they downplay how bad socialized medicine is elsewhere (it's taboo to discuss political views in our country so that is all I will say about that).

I just found a really detailed webpage on ACNES that you might have seen but if not it has amazing drawings of the muscles in the front torso and abdomen as well as all the nerve networks in the abdomen. It also mentions some of the tests that may be proffered to you that are a waste of time. If you want to read it, it's here: https://www.aafp.org/afp/2018/1001/p429.html
An interesting quote from this page says:
"Because of physicians' unfamiliarity with abdominal wall pain and concern about the consequences of missing serious pathology, evaluation is often misdirected toward costly and unnecessary laboratory tests, advanced imaging studies, consultations, and frequent clinic visits. Patients may be exposed to unwarranted invasive procedures such as endoscopy, laparoscopy, or cholecystectomy."

So maybe not being seen by an MD there is a blessing in a way. In the situation you are in you are doing the best thing you can do, which is your own research. BTW, in the UK do you guys have legalized marijuana for pain there? That could be helpful for you as you wait to talk to pain docs there. Try Mayo in London as Colleen suggests. I didn't know they had an outpost there. Mayo is the best place there is and if you can be seen there, your golden.

My heart just cries for the insufferable treatment you are getting there. Please know I sympathise.