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Gastroparesis or slow modility colon
I was diagnosed with gastroparesis with one doctor and he sent me to a bigger university for a pacemaker.
The next university said it was not gastroparesis. This doctor had me do a Sitz Marker Test and after 7 days, I still had 58 markers left in my upper colon. He diagnosed me with a slow modility colon.
For the past 9 months I have (and getting worse) severe abdomen bloating, cramps, pain, nausea, and now lower back pain. I have been on a gastroparesis diet for 6 months with no relief. I only eat frozen yogurt and cracker for lunch. I wait to eat a more bland diet when I get home from work, knowing the bloating and nausea will get worse.
I now can only wear dresses, no pants, due to the extreme bloating and then discomfort of anything tight around my abdomen. Now I have gained 5 pounds in the last week with the same diet I have been on for 9 months.
My doctor now has me on miralax and apple juice. (During the last 6 months I have been with him, I have developed constipation in the past 3 months. Something I have never had in my 60 years of age.) I can't drink apple juice or anything except water due to the fact it also makes me nauseas.
I have tried Reglan, which made me suicidal, and erythromycin, which did not help.
Anyone have these same symptoms or and suggestions of what to do next. The doctor said I may just have to live like this. I am a very upbeat, positive person, but I can't imagine there is not something wrong to start the symptoms just in the last 9 months. I will take any help! Thank you so much.
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I think my methadone is the cause of my issues . I’m trying to get off & have gone down a lot & am only at 30 mg now but I’m struggling bad . My stomach constantly hurts & feel tight & full even when I haven’t ate anything .. idk what to do anymore the drs don’t care about me I’ve been to so many & they don’t even try to figure out what it is . Imma get some miralax today & I’m really hoping that helps .
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1 ReactionAlso I’ve been having stomach issues for 2 years now & it’s causing me severe anxiety & derealization
Most gastros require a referral for a second opinion before they will even make an appointment with you!
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1 ReactionI’m so sorry I understand completely. I had part of my large intestine removed when I was in my thirties. Since then in 2012 I had an ileostomy and rectum removal. I now at age 78 again am having swelling after eating and bearing down pain in my (gone) but rectum area. So much pain and frustration. I felt like my ileostomy saved my like and now am having issues again. Also with eating I do drink an incredible amount of water and drink Orgain drinks ( vegan due to being milk intolerant). I’m back at Mayo Clinic. Having many tests including a gastric emptying test that showed problems. I think it helps to talk to others but feel terrible knowing so many people are dealing with these issues. I’m hoping we all find the doctors that are willing to help us live a better life with these difficult circumstances!
Hello @teresabarton,
As it has been a while since you last posted, I was wondering how you are doing. You were going to have a phone appointment with Mayo Clinic last summer. Did you get any helpful information from that appointment?
How is gastroparesis or slow motility diagnosed? Is it based on a particular test or symptoms? If one is able to have multiple BMs daily with the aid of Metamucil and Miralax, could they still have these conditions? Do you always have pain with these conditions?
opiates and methadone, clearly, perhaps the only two things that could help, or three, walking, walking, walking, and/or a tense unit, gentle placement of the electrodes, and perhaps a vibrating pad under the small of the back, and get a massage of the tummy, if you can, or just gently massage your own tummy, not too hard, but not too soft, and kinda pull and squeeze and...stimulant suppositories, but not daily. but walking walking and walking, or a swimming pool, and maybe throw an online yoga class in there, at least your moving and stretching and your small and large bowels kinda like that kinda stuff.
I do all that already besides the electrode thing . Maybe I should try that . Yoga too ig lol . I’ve been doing special massages to help constipation but I’m scared I have an impaction I can’t remove myself
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1 ReactionBut what do you mean by it could help ? Opioids are the entire reason my stomach is like this lol
I walk from 2-3 miles 6 days a week, plus stair stepper and elliptical. Plus, have a very fiber filled diet, plus Metamucil, plus Miralax, plus lots of water, plus fish oil, plus healthy fats….so, idk. It’s a mystery. It hit suddenly. Went from normal several times a day to nothing.