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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 8 hours ago | Replies (7067)Comment receiving replies
Hello @horthog
I just noticed this discussion and your description of your pain as, "like having been burnt and the feeling of glass under my skin." That does sound very much like nerve pain. I recently recovered from Shingles and I described my pain in a similar way.
You said you are taking Gabapentin and it affects the quality of your life. I understand that. Gabapentin is quite effective for nerve pain but it can make you feel foggy and out of balance at times. Is that the same problem you are having? You also mentioned that you are taking Paracetamol. I'm not familiar with that med. Has a steroid ever been tried?
I can imagine how frustrated you must be. As an R.N. (medical professional) you know enough to know that you need more treatment. It must be difficult not to be able to communicate that with a doctor.
How much Gabapentin are you currently taking?
Replies to "Hello @horthog I just noticed this discussion and your description of your pain as, "like having..."
I am not experiencing any side effects from Gabapentin but am concerned about increasing in strength as it is excreted via the Kidney's. I only have one Kidney now as I had a Tumour, I had to have a left Nephroureterectomy last year for a TCC. I suffered for six months in pain and passing dark red blood in my urine, known as Haematuria. I am now heading towards 300mgs times a day. We do not have a very good health care service in the UK despite what you might hear.
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Hello Teresa and @hopeful33250, I believe that paracetamol is acetaminophen.
Yes, I agree with you Teresa that, these symptoms are pretty typical neuropathy symptoms.
I to take gabapentin and experience the same side effects you described Teresa. It has knocked me off my balance, fogged up my brain, compromise my memory and sub other cognitive abilities as well as making some bad judgment calls.
However, it helps me tolerate my pain. I keep trying to titrate up and down between 600 and 800 mg a day, dividing them into 3 times a day because this drug has a short half-life and that really is the most therapeutic way to take it. I might take 200mg. in the morning 300mg. in the afternoon and 100-200mg. at night, something like that but every time I go down on it, which can be done if you do it a hundred mg at a time for say like 2 to 3 days, of course with permission from your doctor, my pain becomes too much and interferes too much in my life.
I hope and pray all the best for both of you, warmest wishes, Sunny flower