← Return to PNET on tail of pancreas with numerous bilobar hepatic metastases

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@hopeful33250

Hello @donnarushing55 and welcome to Mayo Connect. Yes, NETs are rare and as @tinerobison posted, getting another opinion from another NET specialist is a good idea to help give you peace of mind that your current, "watch and wait" approach, is the best for you right now.

As you probably know, Mayo Clinic has NET specialists at all three of their locations. If you would like to set up an appointment (either virtual or in-person), here is a link to appointment information, http://mayocl.in/1mtmR63. If for any reason, an appointment with Mayo is not possible for you, here is a link of other NET specialists throughout the United States, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/.

Here are some other discussions on Connect on the topic of Pnet that you might find helpful,
--2-Stage Surgery for Metastatic Pnet
https://connect.mayoclinic.org/discussion/2-stage-surgery-for-metastatic-pnet/
--Found Pnet on tail of pancreas, but say it's nonfunctional
https://connect.mayoclinic.org/discussion/hopkins-found-pnet-on-tail-of-pancreas-but-say-its-nonfunctional/
There are several other discussion about Pnet on Connect. Just go to the top of the screen and click on the words in blue that say, "Neuroendocrine Tumors NETs." This will take you to all of the NET discussion groups. Then below the heading you will see, 'Search Discussions." If you put, "Pnets" in that search box it will take you to all of the posts where Pnets are mentioned.

As you mentioned having "perfect blood tests" I'm guessing that the Pnet has not affected your blood sugar. Is this correct?

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Replies to "Hello @donnarushing55 and welcome to Mayo Connect. Yes, NETs are rare and as @tinerobison posted, getting..."

Thank you for the information. Yes, my blood results have been consistently normal, no blood sugar issues or flags of any kind. I believe that is one of the primary reasons my major symptom of pain was largely ignored.