Ouch sounds like nerve pain

@horthog Since your appointment where the medications were prescribed, it sounds like you have communicated with your provider about the extreme pain you are experiencing. You have also attempted to contact your surgeon and went to the ER (ED). You have not received a response from the surgeon and the ER (ED) does not know what the issue is and how to treat it. Is that correct?

I'm not sure if you have such a thing in the UK but here is US we sometimes have coordinators, social workers, and advocates that work with patients in hospitals. They facilitate communication between providers. It sounds like no one is taking responsibility in finding a cause for your pain.

I find it curious that the surgeon will not return your calls. At Mayo Clinic we have the office of Patient Experience and that's another resource I'd suggest you utilize, if you were in America.

Are there social workers, coordinators, and/or an office of patient experience in the UK and at your hospital system?

Hello @horthog

I just noticed this discussion and your description of your pain as, "like having been burnt and the feeling of glass under my skin." That does sound very much like nerve pain. I recently recovered from Shingles and I described my pain in a similar way.

You said you are taking Gabapentin and it affects the quality of your life. I understand that. Gabapentin is quite effective for nerve pain but it can make you feel foggy and out of balance at times. Is that the same problem you are having? You also mentioned that you are taking Paracetamol. I'm not familiar with that med. Has a steroid ever been tried?

I can imagine how frustrated you must be. As an R.N. (medical professional) you know enough to know that you need more treatment. It must be difficult not to be able to communicate that with a doctor.

How much Gabapentin are you currently taking?