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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 22 hours ago | Replies (7049)

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@amandajro

Hello @dvdhoover. I have to commend you on your continued search for answers despite the amount of pain you are in on a daily basis. When is your appointment and what Mayo Clinic location are you visiting?

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Replies to "Hello @dvdhoover. I have to commend you on your continued search for answers despite the amount..."

That is something that I don’t know yet. I have asked several times for more information about the process but I have not received a response from UTSW. I would like to know if I need to change my Medicare advantage plan to cover it and what the next step is to get things started. It’s frustrating to be left in limbo. Do you have any suggestions? I have to stay strong for my sister. She was recently told that the breast cancer has returned and it’s metastatic. I’m in Dallas and she is in Virginia. I just shipped her what I call a decompression chamber. It consists of a galaxy star and ocean projector, an essential oil aroma diffuser and a portable deep bass Bluetooth speaker. My bedroom is set up so that when the pain is overwhelming regardless of the source, or I’m really feeling sick and the anxiety is too much, all I have to do is go into my bedroom and flip a switch so that my room turns into an escape zone. My ceiling turns into a night sky with stars and what ever color of moving clouds that I chose, my diffuser fills the air with whatever calming essential oil that I have in it, and I lay down on my bed with my extra base speaker next to me playing one of the collections of deep sleep and meditation music. It doesn’t have to be very loud at all and the added bass makes the effects of the music more effective. I also have a sound machine that plays the ocean surf 24/7. I was going to share this with all of the other groups that I’m following because it’s been a quality of life saver in so many ways. I’m going to send another message to my GI Dr again today asking for the referral information.

Hi amandrajro, I got a message from my GI Dr at UTSW telling me to go to the Mayo Clinic website and ask for an appointment. They didn’t tell me anything else like, which one or any helpful information. I’ve been reading that the one in Minneapolis might be the best one for GI issues. Do you have any recommendations? I’m totally lost now. Heck, I can barely get to the grocery and back.