← Return to Living with LPSVS (long post-COVID vaccination syndrome)
DiscussionLiving with LPSVS (long post-COVID vaccination syndrome)
Post-COVID Recovery & COVID-19 | Last Active: 5 days ago | Replies (108)Comment receiving replies
Replies to "I developed several autoimmune conditions from Covid/vaccine. It started with antiphospholipid syndrome (clotting disorder). I developed..."
I read your story and yours is a lot like mine. I’m still playing the testing game but we all know I have an immune disorder but not sure which one. Sjogren's lung (pulmonary) disease would be one I would look into. The symptoms I have match the Sjogren's but I also have issues breathing still after three plus years. I will request a Rheumatologist referral. They ruled that out but I think that was still suggested to go see. I too have intense Disabilitating muscle and joint pain. Brain fog, and nerve pain all over. Getting treated for Fibromyalgia. Though there is more to it. My Dr is just treating symptoms. More tests being done. They have mentioned Cushings as well. Going to a Medical School Hospital and seeing the head Endocrinologist referred by my Cardiologist. I can barely walk now. Limited.
Hello!Can I ask you what your treatment for Sjogrens is?I have actually had 3 positive ANA's with a high speckled pattern and my Rhuematologists still don't think I have an Autoimmune diseases.We have tons of Lupus in the Family.I have extremely dry painful sandpaper eyes that I can barely open in the sun.I also have floaters and blurriness along with extreme muscle pain and can barely walk. I think Sjogrens is part of what I have.I dis not realize Sjogrens can affect walking until I read up on it.I just thought it was dry eyes and mouth.