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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)

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@taxmeless

ok. 62 year old male here. had issues related to neuro changes for about 8 years after a bad virus infection. i been through possible sarcoidosis of the lungs that seem to be stable, neurological coordination, strength impact on my hands and legs that largely improved over the years (neuro was concerned for the worst) , my neck was a mess and I had a c2 to c7 neck spinal surgery, and a small right sided unruptured ica 3,5 brain aneurysm ( that my surgeons wanted to repair but I took a wait and see approach.

Now I awoke 3 weeks ago with tender to touch left eye temple pain (especially close to the eye) but always present to some degree without pressing it. slight blurry vision, went to Ophthalmologist who is concerned for GCA. Ordered blood tests for C reactive protein and Sed rate. Awaiting results from yesterday blood draw. Also found new left sided small 2.5 mm aneurysm left ICA. MY added concern is last few times I tested c reactive protein it was elevated to around 5 or 6 back in 2017/2018 and really not sure the cause. Maybe this is all related? Maybe the blood test won't provide me any indications since I was elevated back in the day? Aging is not for the faint of heart/

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Replies to "ok. 62 year old male here. had issues related to neuro changes for about 8 years..."

Hello @taxmeless, Welcome to Connect. I would definitely be concerned about GCA given the symptoms you shared. When I was diagnosed with PMR, my rheumatologist and primary care docs were always checking with me to see if I had changes in vision and any pain or tenderness around the temples or scalp because they wanted to make sure I didn't also have GCA.

Has your doctor started you on any treatment for GCA? Have you had a temporal biopsy to check for GCA?