← Return to Anyone had experience with alternatives to Big 3 drugs for MAC?

Discussion
Comment receiving replies
@gigiv

No side-effect? No hearing loss? No vision change? Which dose were you on, how many days a week and for how long? Did you take any supplements? Did you take NAC?
I am terrified of starting the big 3.

Jump to this post


Replies to "No side-effect? No hearing loss? No vision change? Which dose were you on, how many days..."

Welcome to Mayo Connect. PLEASE! do not let the fact that people have side effects from the antibiotics stop you from doing what is medically necessary.

Every person has a different experience with their disease, their infection, their airway clearance, and when needed their antibiotic therapy. In spite of how it sounds here, not everyone has a terrible reaction to the medications, and even when we do, if the infection is severe, it may be necessary to regain out health or avoid loss of lung capacity.

We have addressed this in the past, and you can read about it here:
https://connect.mayoclinic.org/discussion/macntm-is-different-for-everyone-treatment-might-be-different-too/

Maybe you can tell us a little about how/when you were diagnosed, how you have been managing so far, and whether it is now being recommended that you begin antibiotic therapy?

Sue