← Return to Knowing ASAP if with recurrence - Your Thoughts, Please!

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@michaelcharles

I had RP at age 72 at Johns Hopkins and my recovery was excellent.
There should a number of excellent surgeons at Mayo Rochester. You need to be comfortable with the choice of a surgeon.
Begin Kegels preop w/ professional PT.
We are all different and respond differently. I was fortunate not to have any surgical recovery or continence issues. ED is a side effect that is slowly recovering.
No question that I would choose surgery.
However, points made by others are valid for consideration.
Best wishes.

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Replies to "I had RP at age 72 at Johns Hopkins and my recovery was excellent. There should..."

Hi Michael, I appreciate your sharing your age when RP was performed. And that you're doing so well and glad that you've had a very good recovery. Encouraging as related to my husband's 71 years! You mention your ED, which is certainly of lesser importance to us as compared to incontinence, is "slowly recovering" for you. Do you mind my asking how long ago your surgery was. As far as you know, was your cancer confined within the prostate?

I'm certainly aware of Johns Hopkins excellent reputation. (Jim had a second biopsy opinion there; they noted cribriform.) With the additional knowledge of Jim's cribriform and 0.8 "high risk" Decipher score, we're kind of back to square one with our decision plan. Since his biopsy was in late September, we would like treatment soon (and hopefully before the cancer has progressed). We first thought he would have HDR brachytherapy; now he's leaning toward RP. We will talk again with his radiologist this coming Tuesday. And hope to soon be able to have an appointment with another surgeon here who was highly recommended. We did not appreciate how Jim's assigned-to-him urologist spoke to us at times, so it's probably best to shop for a new urologist. MayoConnect sure has a lot of wonderful people willing to share their thoughts and experiences. It's a big help and comfort. Thank you! Rose (and Jim)