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Prognosis for Metastasized NET

Neuroendocrine Tumors (NETs) | Last Active: Mar 20 11:16am | Replies (63)

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@patrick031621

10/11/24
Update---Nothing has changed since I wrote this except I have substituted eggs in the morning for the bagels. It is protein in the morning which again I believe is the best course for eating for carcinoid persons. I keep my calories still down and avoid sugar. Daily life is good and I feel as strong as ever. I keep my weight at 135 lbs.--It has been 21 years now, I am 77 and the tumors are still there like good renters of my body space.

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Replies to "10/11/24 Update---Nothing has changed since I wrote this except I have substituted eggs in the morning..."

I love your positive attitude!!! It’s so helpful to think of carcinoid cancer as “renters” rather than invaders. Thinking of “renters” made me smile! It’s how I will conceptualize it from now on. And, I believe it’s true. A cure is on the way, and one day these renters will be evicted! Lol!
Thanks so much! 😊