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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 6 hours ago | Replies (556)
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@dwolden

Thank you for this post. It is very helpful to me. My husband was diagnosed with MDS in a high risk category for developing AML. We have been referred to Mayo and are just starting the transplant process. We live near Duluth so it is about four hours to Rochester. He is receiving chemo in Duluth with vidaza to improve his blood counts before transplant. I am his caregiver. I’ve been working to stay positive and get organized. Hearing about all you have been through and your positive outcome really helped.

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Replies to "Thank you for this post. It is very helpful to me. My husband was diagnosed with..."
Lori, Volunteer Mentor | @loribmt | Jan 11 9:00am

Welcome to Connect @dwolden. Your husband is in the best hands with the BMT team at Mayo! While it’s not an easy process for either of you, this bone marrow transplant will give your husband a second chance with life!

As you can see there are several of us in this group so please don’t hesitate to ask any questions, large or small!
My husband and I live a little more than 4 hours from Rochester from our home in Wisconsin. The prospect of moving to Rochester for 4 months was a little daunting at first but it became our home away from home. I’m coming up on my 5th rebirthday the end of June and we are still so very connected to Mayo. I was told ‘we’re married for life’ by my team…and they meant it!

If you haven’t seen this list already here is a really comprehensive guide to transplant. Your husband will be having an allogenic transplant so skip past the ‘auto’ section.
https://connect.mayoclinic.org/blog/caregivers-for-bmt-car-t-and-hematology/tab/transplant-journey/#ch-tab-navigation
Does he have a donor already and a target date for transplant?

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Colleen Young, Connect Director | @colleenyoung | Jan 16 8:42pm

Hi @dwolden, I'd like to add my welcome. How are you doing with getting things organized? How is your husband doing on chemo?

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callie28 | @callie28 | Jan 19 9:02am

I am the caregiver for my husband who has MM and we live near Duluth. He had BMT November of 22. Some ups and downs but MM stable

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