← Return to Knowing ASAP if with recurrence - Your Thoughts, Please!

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@rosewg

Hey Heavyphil, Thanks for sharing this information. There are so many options. Which is great but also rather mind boggling! I've read just a bit about cyberknife. It's something I'm interested in knowing more about. Thanks for the mention of the American College of Radiation Oncologists. When beginning to look at treatment options, it was the list of symptoms that steered him away from surgery as a first choice. But now, as I've said, it's something he's strongly considering. I look forward to when his right decision is made! Sorry, to hear that your post-surgery symptoms have been what they are. Wishing you well in your future!

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Replies to "Hey Heavyphil, Thanks for sharing this information. There are so many options. Which is great but..."

Well, you don’t hear many men complaining about side effects with Cyberknife. However, I have never met anyone who had RP who DIDN’T have them - some life long. With 10 yr outcomes the same - and seeds available as a backup - at age 71 I would go with Cyberknife. But I can only say that having gone thru RP, having miserable side effects, and having the treatment fail anyway. Seeds were not an option for me since I had a previous Green Light laser which made seed placement risky.
Again NO ONE Can tell you what to do; but even my surgeon told me that if I had been 74 instead of 64 even he would have recommended cyberknife. Just my opinion - not medical advice!

I had RP at age 72 at Johns Hopkins and my recovery was excellent.
There should a number of excellent surgeons at Mayo Rochester. You need to be comfortable with the choice of a surgeon.
Begin Kegels preop w/ professional PT.
We are all different and respond differently. I was fortunate not to have any surgical recovery or continence issues. ED is a side effect that is slowly recovering.
No question that I would choose surgery.
However, points made by others are valid for consideration.
Best wishes.