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Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Neuroendocrine Tumors (NETs) | Last Active: Apr 15 10:57am | Replies (80)Comment receiving replies
I was diagnosed with stage 4 pancreatic NET with liver metastasis in 8/22. I learned what innumerable meant as it was used to describe the lesions on my liver. I took captem for 13 months. I am on my third month of just capecitabine. My pancreatic primary is about 1/3rd of its original size and my liver lesions are almost gone. I will be on capecitabine for the foreseeable future.
Replies to "I was diagnosed with stage 4 pancreatic NET with liver metastasis in 8/22. I learned what..."
Congratulations on the great results! I’m so interested in the fact that you’re now on just the cap for maintenance as that is what my husband is also doing now. I hadn’t yet come across anyone on a similar regiment. My husband had almost 50% reduction in his mets while in captem and now after 3 rounds of cap he is stable. (primary was surgically removed 16 years ago) Hiw have your results been while in cap only?
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That's a significant reduction and, of course, wonderful new! Congratulations and wishing you all the best on your journey!
Tom