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Pheochromocytoma: Anyone being treated for an adrenal mass?

Diabetes & Endocrine System | Last Active: Sep 27 2:28pm | Replies (93)
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@nanakouk

Thank you for your response…as of today I called about the authorization of my Pet Scan.. denied due to not enough previous testing done that requires a Pet Scan.. had a 24 urine test which showed elevated levels and Cat Scans/with contrast of the chest and abdomen..am waiting for the next step..very frustrating!

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Replies to "Thank you for your response…as of today I called about the authorization of my Pet Scan....."
bhienia | @vkoonz | Sep 20 11:17am

Hi there! Did they do the ACC test with your 24hr urine? I was incidentally diagnosed with adrenal nodule in 10/2023 and last CT this year 7/2024 it remained stable in size. My Endo ordered 24hr urine test this year 8/2024 and did an ACC testing that my insurance didn't cover (it's quite a bit) and i wasn't informed that they will performed this test, estimate were not provided for me. Anyway, my next visit is next year (per Endo order) this time a PET Scan from Skull to thigh. I have had 3 CT's from 10/2023 - present date.

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