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MPA Anca Vasculitis

Autoimmune Diseases | Last Active: Sep 15 4:50pm | Replies (6)

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@oakwoman

It sounds awful and I'm sorry you have gone through so much. I have EPGA and microscopic polyangitis, vasculitis. I bave neuropathy in feet and hands, I think it is part of vasculitis. I first had asthma which was manageable, then came neuropathy, I've had arthritis for a while. My doctor said those were all signs of vasculitis. It can effect everything. I would see a good rheumatologist.

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Replies to "It sounds awful and I'm sorry you have gone through so much. I have EPGA and..."

I also have nerve damage from EGPA and am on prednisone while waiting to try Nucala, a biologic to try to lower prednisone use. You need a good Rhumatologist who is aware of these rare diseases. Many doctors never see a patient with this and misdiagnose. Keep looking and find one!
Best wishes.