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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 2 hours ago | Replies (1418)Comment receiving replies
Interesting reply. I understand how this forum works. I’ve had a lot of meetings with my local expert cancer “team”; have had second opinions and have tried to educate myself over the past 9 months. What I was looking for with my question, was other people’s experiences. Completely understanding that the replies are not doctors. So, I am looking for regular folks opinions and experiences. I was not looking for, or expecting any “professional medical” advice or opinion.
Replies to "Interesting reply. I understand how this forum works. I’ve had a lot of meetings with my..."
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@waltsocal
If you are looking for the experience of others, I'd encourage you to read the posts of @stageivsurvivor on his profile. Click on "Comments" and you can read all of his comments since he first posted on Connect. Here is the link to his profile.
https://connect.mayoclinic.org/member/00-3a8075b911bad2ae280957/
Also, you might take a look at the profile for @markymarkfl
https://connect.mayoclinic.org/member/00-86391a0b9908cbd2338160/
They are both long-term survivors of pancreatic cancer and by reading their posts, you will see what steps they have taken in treating this type of cancer. It is important, however, to realize that everyone responds differently to treatments and not all pancreatic cancers are alike. However, their posts will give you a feel for how they approached their treatment.
I am glad to hear that you have sought second opinions and also attempted to learn as much as possible. Being a good advocate for yourself is most important. I look forward to hearing from you again.