← Return to Knowing ASAP if with recurrence - Your Thoughts, Please!

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@leenielsen

Jim, may I ask what your Gleason score was and how many positive cores? I have 5 cores all 4+4. all one side. some higher that others, highest was 85%. PSMA pet scan showed "potentially" no spread to Lymph Nodes or seminole Vesicules. I', scjheduled for RP on the 29th...

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Replies to "Jim, may I ask what your Gleason score was and how many positive cores? I have..."

Hi Lee Nielsen, I'll answer for my wonderful husband, Jim. (He's @jamesharrison, I'm pretty sure, if you would like to connect with him directly. I'm sure he'd welcome that.) Let's see.... Gleason 3+4 found in two of 16 biopsy samples. (Sounded pretty great at that point.) Then, a second opinion from Johns Hopkins on the biopsy, with one of the two biopsy samples with a "large cribriform morphology" in 40% of that sample. Just last week got the results of the Decipher test, with a high risk score of 0.8. Jim's mind had pretty much been made up until we got the Decipher score. Now we're reconsidering, with this new information.

I'm so glad you got the good news of (potentially) no spread, having had the chance to get a PSMA PET scan. (Jim was told by his urologist that he didn't qualify for the scan, which was disappointing.) I hope all goes very well for you on the 29th! If Jim chooses surgery, it will likely be sometime in February. Wishing you well!

Certainly, my Gleason Score was 7 (4/3). Eleven of the biopsy cores were positive for PC. My scans also showed "no" spread to lymph nodes or seminal vesicles.

I hope you are scheduled for a RP at a center of excellence and have chosen the best possible surgeon at that COE. The quality of your life, for the rest of your life, will depend on the competence of your surgeon and support staff.

Best of luck with your surgery!!!

Jim