My husband has Glioblastoma. Diagnosed after a biopsy on Oct. 16. Inoperable other than the needle biopsy. Radiation and chemo started simultaneously on Nov. 20, which felt like forever to wait. But we were told he had to sufficiently heal from the surgery in order to tolerate the radiation. The tumor had grown noticeably between Oct 16 and Nov 20, which was a concern.
His MRI on Jan 5 showed considerable reduction in tumor size from Nov 20. The doctors are very pleased with this result given their hope was to stabilize the tumor size now. Second round of chemotherapy started yesterday. First round dose was 270, now at 375. He is 86, so this is hard for him. But he’s doing rather well other than diarrhea. And he no longer reads much, a huge change.
I cannot imagine someone going through this process without a family member or friend acting as a patient advocate and intermediary.
Good luck to all on this journey.