Mild osteoporosis DEXA scores: what would you do?
I posted this question earlier, which was about mild vs. severe DEXA scores. Replies seemed to veer off pretty quickly, lol, so I'm starting again. My last DEXA in May 2023 was a -2.7 spine, and during a surprisingly quick appointment a new doctor (an endo) said to go with Prolia. Background: I had been on Fosamax for over 4 years based on a -2.5 score. I had an initial slight improvement then it dropped to the -2.7. After reading quite a bit on this forum and elsewhere, I don't think my scores warrant Prolia. In fact, I've decided not to go on any medication until May of this year, when I will pursue another DEXA on a TBS-equipped machine. I will consider it my new baseline. My last two DEXAS were on different machines. What are your thoughts about scores, and when it becomes really necessary to treat with meds? Would anyone else here approach it as I am, by waiting a year for another DEXA with TBS?
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I started 13 years past surgical menopause and will stay on rest of my life with blessings from cardiologist, oncologist, and Obgyn. Had I started sooner, might not have needed Tymlos. I started hormones one at a time with two weeks in between to look for any negative side effects. Estrogen, Progesterine, and Testisterone, all bioidentical,
I did the diet and exercise, pt approach and my dexa improved 20% in one year, still osteoporotic, but I still fractured. I am now on bioidentical hormones that I wish I had started long ago, including testosterone. My hips are worse than spine, even though spine fractured, so I’ll be taking hrt concurrently with Tymlos. Hrt protects hip, since Tymlos, on dexa can initially lower. All this said, my mom was on oral eatrogen alone for 30 years and still had three spine fractures, hip and pelvis. Diet, exercise, and meds!
I was on .025 transdermal estrogen. That is the lowest dose and it has been shown to maintain density. After 5 years, I recently increased to .0375. I am currently seeing a menopause specialist and she wanted me to go to .05 but I was reluctant as I was concerned about the potential for breast tenderness and enlargement so I compromised with .0375. She felt that the slightly higher dose would provide a greater benefit. I've had no body changes or side effects on the new dose. It is still considered a very low dose. I have looked into testosterone and at this point, it seems that it is not recommended for women except in the case of low libido. There is little to no research on women taking it for osteoporosis. In addition, testosterone is processed and converted to estrogen so personally, I am not comfortable taking it and was recommended against it by my menopause specialist who has been prescribing HRT for decades.
Thank you so much @teb. This is all relevant to my situation, as is your noting that hip scores tend to fall after spine. I will use your information while proceeding.
I’m on .5 transdermal- 50/50 mix estradiol/estriol. And, will lower if I need to. Trying low dose testosterone every other day. It does help build muscle It is used in Australia and GB.
Thanks and good luck!
I agree with that very much @rjd. (original poster here)
I am in Louisville, Kentucky -- a hospital town and health education hub. I was put on Fosamax by my PCP, and she referred me to an endocrinologist who wanted Prolia. That's it. I tried to get an appt with a rheumatologist within my network who had advertised as an osteoporosis specialist, but when I called I was told that the practice "no longer treated for osteo". I was shocked. There is just no specific path of care.
Thanks for this. I've heard same about testosterone. I highly recommend the Vajenda by Dr. Jen Gunter, she has a lot to say about unregulated bioidentical hormones, and testosterone.
I'm not familiar with her and will take a look at her site. Dr Mary Claire Haver is also a wealth of information, presenting results of scientific studies in an easy-to-understand manner.
I am 72, living in NE KS. I have all my parts intact, have never been on HRT. Recently had a DEXA scan: Spine - mineral density of 0.975 grams/cm squared. This is a T-score of-1.8. Femoral necks - demonstrate a bone mineral density of 0.628 grams/cm squared. This is a T-score of-2.9.
My primary mentioned treatment with prolia or fosamax, but was unclear as to any side effects, etc.
He never mentioned HRT.
Does anyone know of a specialist of any kind in this area (NE KS, KC, or NW MO) I could see about guidance and advice?