← Return to Knowing ASAP if with recurrence - Your Thoughts, Please!

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@hammer101

Rose, I agree with the other comments, no two people are the same and each man will ultimately need to move forward with the treatment plan best from himself and his loved ones. For myself, I went with a robotic radical prostatectomy with nerve sparing at a center of excellence. I had my surgery in November 2022 and was 56, healthy, positive attitude with life, and was wanting another 30+ years of living with my wife. I did a significant amount of research before my first appointment to ensure I went into the the conversation with a baseline of knowledge. I decided on a robotic RP because of several reasons: (1) I wanted to fully understand the level of cancer that was in my body (post surgery pathology) and not rely on imperfect imaging tools and biopsies. (2) Cancer is so complicated and you never really know if the prostate cancer is completely gone - A RP does not guarantee all the cancer is removed, but in my opinion, gives you the best chance to address the known cancer. (3) A radical prostatectomy removes the prostate, seminal vesicles, and an assortment of pelvic lymph nodes versus radiating areas of concern or suppressing the cancer. (4) I did not want the possible side effects of radiation. I can handle the potential side effects of the RP (incontinence, impedance, infection), but I did not want to add in another variable like radiation.

Everyone is different when coming back from a radical prostatectomy. However, if you choose the best possibly doctor at a center of excellence (like Mayo-Rochester), your chances of recovery are very good. For myself, I am a bit over a year out from surgery. As far as I know, cancer has been removed (can never really know) and follow up PSA levels have been undetectable. Thankfully, incontinence and impedance were minimal post 3 months. As with others, I was methodical with my Kegels and getting plenty of sleep after the surgery. Also, stayed active during the recovery.

Please note - I am completely biased based on my experience with the RP. Each individual is different and treatment plans must align with life expectations.

Best of luck to you and your husband in making the treatment decision and moving forward.

Jim

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Replies to "Rose, I agree with the other comments, no two people are the same and each man..."

Jim, may I ask what your Gleason score was and how many positive cores? I have 5 cores all 4+4. all one side. some higher that others, highest was 85%. PSMA pet scan showed "potentially" no spread to Lymph Nodes or seminole Vesicules. I', scjheduled for RP on the 29th...

Oh hammer101, everything you've shared in getting to where you are, are exactly the things we're thinking about. Thanks for sharing your rationales in deciding. My husband's leaning toward RP since getting his 0.8 Decipher score last week. So lots of talking and serious thinking going on here right now. I feel sure I want him to have an RP, for the many reasons discussed in this chat. Reasons like you've shared here! But the decision, obviously, is his. I expect he will decide on his treatment soon. Yep, we're lucky to be at Mayo Rochester. Hope those PSAs continue to be "undetectable" for you! Jim's older than you; hopefully he'll do as well as you have! Wishing you well!