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My Husband's journey with Glioblastoma
Brain Tumor | Last Active: Oct 21 5:20pm | Replies (174)Comment receiving replies
I’m so happy for you and your wife. It’s great news that the MRI didn’t show any tumor growth and you can spend sometimes in Arizona. I hope she continues to improve and get better. As for my husband we are still waiting for insurance authorization for radiation which sucks. His condition is deteriorating. He is becoming very imbalanced and starting to have hiccups these are all the signs that he had before surgery that got him to ER. I’m so nervous thinking that maybe the tumor has come back and we are going to go through chemo and radiation for no reason just for more torture 🙁
He had his surgery on December 2nd and is going to start chem/rad on January 18th. Is this too
Late. They keep telling me that it is not but I’m thinking it is. The radiation doctor did a CT with contrast to do the planing and when we asked him if there is any changes he said nothing significant. So why is he getting worse? God, how can I wait another 9 days for the start of the treatment? Waiting impatiently! Hope everyone else is in better situation. We are praying for everyone. Nobody should go through this.
Replies to "I’m so happy for you and your wife. It’s great news that the MRI didn’t show..."
We had a delay between the surgery and beginning of chemo and radiation also. It is to allow the brain to heal sufficiently from the surgery. In my wife's case she needed that time to heal, and it turned out well in her case. It will probably be a difficult time adjusting to the chemo and radiation as there is some experimentation adjusting to the side affects of those procedures.
Prayers to you and your family.
@manty54, thinking of you as you and your prepare to start chemo and radiation. How are you doing?
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My husband has Glioblastoma. Diagnosed after a biopsy on Oct. 16. Inoperable other than the needle biopsy. Radiation and chemo started simultaneously on Nov. 20, which felt like forever to wait. But we were told he had to sufficiently heal from the surgery in order to tolerate the radiation. The tumor had grown noticeably between Oct 16 and Nov 20, which was a concern.
His MRI on Jan 5 showed considerable reduction in tumor size from Nov 20. The doctors are very pleased with this result given their hope was to stabilize the tumor size now. Second round of chemotherapy started yesterday. First round dose was 270, now at 375. He is 86, so this is hard for him. But he’s doing rather well other than diarrhea. And he no longer reads much, a huge change.
I cannot imagine someone going through this process without a family member or friend acting as a patient advocate and intermediary.
Good luck to all on this journey.