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Does anyone have nesidioblastosis?
Diabetes & Endocrine System | Last Active: Jan 15 2:01pm | Replies (13)Comment receiving replies
I had Gastric sleeve and had to convert to Gastric Bypass. I have been diagnosed with severe reactive hypoglycemia as a result from the bypass. I am seeking more information from a physician as Nesidioblastosis signs and symptoms seem to fit more accurately. I have tried Acarbose that led to awful gastric results. I cannot take Metformin for other reactions. I am receiving my first dose of Sandostatin LAR tomorrow. It is super off label for Reactive Hypoglycemia. If this does not work, I am requesting to go to Mayo in MN. Has anyone had experience with getting help from mayo for this condition?
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I just saw Dr Vella at Mayo in MN last week and had tests for the same thing. I have RNY in 2016 and the last year have has severe Hypoglycemic episodes. Last week he did the Mixed Meal Study and also the 72 hour fast. He is awesome! Diagnosed with postprandial hypoglycemia. Meaning when I eat my food empties into my intestines too fast causing reactive hypoglycemia 1-3 hours after meals.
He has suggested to start Octreotide injection 3x a day which I had agreed to, but doing some research I am not sure that is the route I want to go. He did mention a surgery also, where they could go in and suture the bottom of my stomach so food does not pass as quickly. I am thinking that may be a better option for me, but want his opinion and to do more research! Good Luck!