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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: Apr 26 9:22am | Replies (6794)

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@rseago87

Hi all!

I am hoping this will provide another resource in everything I've been going through the last year.

Last fall I started experiencing daily sharp, stabbing headaches that would come and go all day long. My GP referred me to a neurologist as I already suffer from migraines and she felt that would be best for treating two headache disorders. Through a process, we got them under control with indomethacin. The initial diagnosis he gave me was indomethacin-responsive trigeminal autonomic cephalalgias. For seven months, I had no headaches, unless by my own fault I missed a dose. In August, the headaches flared up despite the medication, though not as severe as last fall, which has been very discouraging as once again I am in daily pain at various levels off and on throughout the day, and finding a solution has been challenging both on the medicinal side of things and in working with my neurologist. This Tuesday I'll try and SPG block for the first time which I'm hoping will at least provide some temporary relief. Until that relief comes, I will continue moving on one day at a time as that's all you can do.

Rebecca

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Replies to "Hi all! I am hoping this will provide another resource in everything I've been going through..."

@rseago87 A suggestion for future reference, is looking into the Michigan Head Pain Clinic in Ann Arbor. I was seen as a patient at the clinic and also hospitalized two times at their inpatient facility. I now suffer from only occasional migraines. Dr Joel Saper was the founding neurologist and patients come from across the U.S. and foreign countries. The first time I was an inpatient for 4 weeks and the second time for 2 weeks. I don't know everything about your circumstances but they were able to help me. I am sure there is information online that might indicate if they would be a source of help for you.

Hi @rseago87 I'd like to welcome you to Connect. So you suffer from two distinct types of headaches now? Migraines, which you already were having and starting last fall, TACs? I am very sorry for your suffering. Linda, my wife, has developed a headache disorder in the last year or so. She has not sought treatment. She says it is not a migraine and she believes it is caused by barometric pressure change. Not sure you'd be interested but she has been taking two remedies lately. The first is a tea for migraines, called Shifa Turmeric Headache Relief Tea (OK, she says it's not a migraine but this stuff does cut the edge off her pain) and a product called Clear Headache (both on Amazon). Both of these give her some relief. Just tossin' it out there. If you are interested in the tea I can elaborate on the steps my wife does to make/take it. Hope you get relief. I know that when Linda has a bad one, it's terrible! Best, Hank