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Meet others living with Head & Neck Cancer: Introduce yourself
Head & Neck Cancer | Last Active: Sep 21 5:27pm | Replies (538)Comment receiving replies
Hi, I assume from your message you may have already been to Mayo. If you’re still there, you may want to inquire about the DART 2.0 study. Its purpose is to investigate the efficacy of de-escalated treatment for HPV related cancer. I enrolled but did not have the less treatment option as the cancer was too far advanced. Nevertheless, involvement in the study was valuable. I had proton therapy radiation on both sides of my neck ending in September and have tested cancer free so far. I had very few side effects, these I have so far are manageable. Good luck to you.
Replies to "Hi, I assume from your message you may have already been to Mayo. If you’re still..."
Thank you i just met with msk in new york which is near where i live they said the only way to get out of bone is with flap surgery ie take out entire cheek cavity and reconstruct with no guarantees. They implied radiation and chemo could do the same. Not
sure what to do as i am not aware that can get it put of the bone
I also got opinion from nyu permitter and they could do less surgery and scrape? Then radiation
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Hi
Thank you for reaching out!
I’m actually meeting with Mayo tomorrow in Rochester and will inquire about the test. My community hospital was recommending no surgery, 6 1/2 weeks photon radiation and chemo. I’m hopeful that I can forego as much radiation as possible, hoping this is an option.
It’s great to hear that so far things are going well for you, hopefully it stays that way!