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Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:28pm | Replies (113)
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@stevestenberg31

How old is your wife? I'm 55yr old Male and I had a SI resection, primary NET, GB and some lymph nodes removed and I feel much better, no bloating or abdominal pain. I can eat more, exercise regularly and my quality of life has improved since. I ask how old b/c I'm curious about the liver transplant strategy as I also have "innumerable" liver NETS.

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Replies to "How old is your wife? I'm 55yr old Male and I had a SI resection, primary..."
kim1965 | @kim1965 | Jan 9 9:33am

Well we were surprised at the transplant option, our assumption was we get the NET to the lowest possible level and hope it stays at a mtn level only for decades. She is 58 years old, we are finishing up the PRRT treatments to keep it only in the liver hopefully. This summer a PET scan will be done, and if the NET is still only in the liver, she will be put on the list for a donor liver or a live donation liver. There is no guarantees even with the donated liver, but it gives her the best chance to live a long life. What other questions can I answer for you.

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