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Functional Neurological disorder next steps

Brain & Nervous System | Last Active: Jun 26 10:35am | Replies (21)

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@rattlesnake

Hi Rachel,

Yes the video was a light bulb moment for me as well, with both positive and negative emotions. I am a highly analytical person and the video provides the technical aspects in addition to examples that help paint the big picture.

But being an OCD analytical engineer type person make things difficult as I have to focus and understand all aspects of my problems, symptoms. Now I can start to ignore and focus on areas I can control. I no longer feel I need to continue to search for answers to symptoms.

The many providers I interacted with gave similar feedback for 'treatment', but not in one cohesive message or at a single time. At first I was skeptical of any help from counseling. What I learned was use of some common sense type thinking. How can I make my life happier or how can I not make my life more miserable. (stress, metal, body). I think I have most of the pieces in place I need, with some work to go on some more than others.

The idea that my problems were not physically diagnosable was hard to swallow. In my head, really? The life changing relief of Dulux was proof though. Yes I'm clinically crazy, but still alive. Since meds I have worked on other sources of stress which has continued to made a positive difference.

The misery I have endured has changed me as a persons, for better in my view. I have become much more compassionate about other people and their challenges. I though I was stronger and somehow better than those who needed manage anxiety, mental or other weaknesses. Now I am a better husband and father.

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Replies to "Hi Rachel, Yes the video was a light bulb moment for me as well, with both..."

@rattlesnake Your response is so uplifting and inspiring to me this morning because I understand your desire to want definitive answers. It's difficult to rewire the brain in to not being as perfectionist, controlling or analytical, and believing in a diagnosis that can't be proven on paper. Thankfully, Dr. Sletten brought validation to you and what you experience with FND.

I share your mindset and understand. I continue to work at reshaping thoughts by replacing negative with positive and letting go of things I can't change or control, but it has gotten easier with practice, and by allowing grace, I have learned more patience and better how to embrace the stability of plateaus. Flexibility has been my friend.

You, sir, have a lot to be proud of! By putting in the work to learn and apply is commendable. Dr. Sletten tells his classes that we are all "type A perfectionistic control freaks", and that's what brings us to rehab - he's not wrong. Those with desire to fix, learn or understand fit the mold, however, they also have to reign in to find balance and harmony in C-life.

I commend you for working with a counselor and not giving up or giving in. Also, recognizing your growth and evolution in becoming a better husband and father. Might there be any opportunity for you to attend Mayo's Pain Rehab Center's 3 week program in Florida? I believe you would find it absolutely amazing and do quite well. If not, you're more than on the right path in my book.