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Neuropathy in feet with no pain or numbness

Neuropathy | Last Active: Jun 2 4:12pm | Replies (9)
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@seniordon09

I've had neuropathy pain in both feet for about 15 years now and it feels like knives stabbing my feet and there is a tightness feeling in my feet . I hurt 24/7 and on the pain scale i'm a 10 !
I'm not a diabetic !!
I don't know why I have it and I've seen numerious doctors with no good results !
Has anyone experienced neuropathy pain like mine and have you gotten any good results from a doctor or Neurologist?
I need help,
Donald Goss

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Replies to "I've had neuropathy pain in both feet for about 15 years now and it feels like..."
msr2323 | @msr2323 | Jan 8 5:22pm

Donald,
Hello! I have had a “neuropathy” since my dx with MS in ‘15. It was mild and quite tolerable. Then in ‘18 I was dx w/Bladder cancer and received BCG and now Mitomycin, then “3 three’s the charm” & in ‘20 I was dx w/Breast cancer and received chemo and radiation. I am not diabetic! I was healthy before all of this. My MS dx came at age 65. The bladder cancer is NED and the breast cancer is in remission.

I’m now 3 years post chemo for breast cancer and the neuropathy is so much worse, but it is NOT painful. It is more than annoying in that I experience a tight wrapped up feeling as though duct tape has been roIled around both feet and like I am wearing a shin guard on the lateral side of both legs.

I know that is not your specific question, but I have been treated by a neurologist since 2015 and the treatment for the neuropathy has been ever increasing doses of gabepentin. Honestly, I am on 2100 mg (just recently went up 300mg after wanting to leave myself wiggle room with the dosage as I con’t to experience these very strange sensations and should it turn painful) and I can neither tell the difference or even if the medication helps…I am afraid to titrate down and go off of it to see the results.
It’s a quandry. I have tried every medicine out there, Lyrica made me sick and the anti-depressant regimen was useless and provided no releif.

In May of ‘23 I had lumbar surgery for spinal stenosis; it relieved the pain that was targeted, but I have lower back pain and aching in my thoracic muscles…neuropathy got a bit worse, I think…it is so subjective.

Saw my PCP the other day to discuss all this and he said I have neurogenic claudication and while that causes a heaviness in the legs it can affect the neuropathy. Wonderful. AND long story nearly over, he told me that there’s really not much to do for peripheral neuropathy at any stage that will cure it. He highly recommend that I remain mobile, walk, get on a stationary bike, do gentle yoga…all of which I am doing. It can’t hurt and may help.

Having lived through these dx and truly trying the best I can, I laud you for your strength in dealing with 15 years of discomfort and pain. Have you been seen at a NIH or teaching hospital, have you tried any alternative methods of treatment; massage, acupuncture, needling, etc.?

I truly wish you the best. Be strong…

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