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Tamoxifen and Fibromyalgia

Cancer: Managing Symptoms | Last Active: 6 days ago | Replies (14)

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@mir123

I have chronic pain with fibro-like symptoms (but it is not an exact diagnosis for me). The pain was indeed worse after surgery and radiation. My PCP doubled my pain meds (I do well on these) and I continue with rolphing/PT/micro current twice a week (yes, out of pocket). About 8 months out from treatment, I'm back to "normal." But I have thoughts for you. Will your oncologist allow a tamoxifen "vacation"? That will give you more information about source of fibro increase. In addition, can you switch to a different estrogen suppressing drug? I'm doing well on letrozole (although yes, many women have bad symptoms). You might also discuss dosage--can yours be lowered without ill effect etc. Also, try and get some actual statistics. If tamoxifen lowers recurrence rate just a little you might see if you really think it is worthwhile. Sorry that this advice is work for you, when you least need it, but it is what came to mind. I do think chronic pain made my recovery harder, but at least I expected I wouldn't be "fine" 3 days after lumpectomy! Wishing you some positive change.

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Replies to "I have chronic pain with fibro-like symptoms (but it is not an exact diagnosis for me)...."

Hi
I only took tamoxifen for 6 days. I have never felt so disgusting in my life I almost blacked out driving. It is two months Since I stopped the tomoxyfin and I still feel Off. 10 wks Since radiation stopped and my fatigue It seems to be Worse ever Day. Very frustrated