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PMR Taper and pain

Polymyalgia Rheumatica (PMR) | Last Active: May 30 12:19pm | Replies (63)

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@nyxygirl

@riji where do you live ? there is a Novartis trial recruiting people that are having a PMR flare as i understand the criteria - there is a conversation i started called Clinical Trials

And /or ask you doctors to consider Kevzara to help your tapering

you wrote : "I have pain in shoulders and biceps and upper thighs and knees which makes it hard to do some things but I force myself to walk and exercise when I can."
Interesting that you are having the classic pain symptoms with elevated CRP - i have been tracking symmetrical pain in shoulders biceps and joint pain in both thumbs during the past month or so BUT without elevated CRP /ESR. so since i have a history of cervical spine radiculopathy - i am guessing this is my issue.

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Replies to "@riji where do you live ? there is a Novartis trial recruiting people that are having..."

I'm in southern new hampshire - I'll ask my rhemy about Kevzara.....what are side effects?
Thanks for info!

I looked it up and kevzara has some pretty nasty side effects---don't like messing with my immune system. I'll ask doctor anyway.