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Anyone think that it’s no longer long Covid? just permanent damage?
Post-COVID Recovery & COVID-19 | Last Active: Jan 21 10:12am | Replies (89)Comment receiving replies
It’s really hard to get a team together where different disciplines get it. I have neurologists, a pneumologist, psychiatrist, neuropsychologist, cardiologist, and other clinical study doctors. They’re all affiliated with the same university and its Covid program. But I had to assemble the team and coordinate data sharing and communication. It takes effort when some doctors have limited Covid understanding.
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Agreed. It has been like pulling teeth to get some docs to get interested in what’s going on and communicate with each other. When I told my PCP I was losing weight without trying he said “keep up the good work”. It took a follow-up letter from me saying this was a problem and I needed help. I had to plead to get into a local long Covid program. Even there I was met skepticism - they at first did not believe I had a real seizure - thought it was psychogenic. It took a sleep seizure to convince them. Now all the docs are on board that I got issues, even if they don’t know what or why yet. A plus is they can all see each others notes and diagnoses. Still a long way to go but hoping they are on the right track.