Osteoarthritis

Posted by howardk @howardk, Oct 27, 2017

I have severe osteoarthritis in my ankles and knees
Any suggestions? I am on a blood thinner so ibuprofen is not an option although it seems to work well.

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Cortisone injected in both knees yesterday morning. So far, so good!

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I hope it works for you. I've had it done twice but it only helped for a few weeks. I don't want knee replacement so I may try again.

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@JustinMcClanahan

Hello @howardk,

Thank you for starting a conversation on ankle & knee arthritis. I have some personal experience with these ailments as well. I have had my right knee replaced due to end-stage arthritis and have end-stage arthritis in both of my ankles as well. I have now had my left ankle fused and am postponing doing that with my right ankle as long as I can hold on.

I tried many things over the years. Ankle braces were about the only thing that kind of helped. I also tried Celebrex but didn't see any results from that and ultimately decided to discontinue it. Have you discussed custom ankle braces with your medical provider? There are prosthetics out there that will make custom molds of your ankle and custom fit braces, they help stabilize your ankles and it can help with taking some of the pressure off of your ankles when you are active. I also have hemophilia, meaning my blood does not clot on its own, so I also cannot take ibuprofen. I take tylenol when the pain is really bad, but as you may know tylenol's power is limited. I've learned the best thing for me is listening to my body when the joints are feeling inflamed and to take multiple breaks, and at the end of the day to elevate the joints and ice them.

@howardk, if you don't mind sharing a bit more, what options have been discussed with you? Have you thought about asking about custom braces? Are you also looking at joint surgeries or is your arthritis not yet to that stage?

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I am beginning to feel foot paid that I think is due to arthritis which I have in my knees. Anyone had experience with this?

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I am 33 years old and I have OA in my Left SI joint and my whole spine I also suffer from cervical stenosis... can this be related to autoimmune?

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Hi
They say the worse the pain, the more you should move.
I have personally found that advice hard to take.
I used to get a prescription dose of ibuprofen with stomach meds mixed in. Sorry I cannot remember the name of the prescription. It worked well except after time, it causes major issues with my stomach. Soon after, I had weight loss surgery and you cannot take any ibuprofen or aspirin type meds. I don't find and strength of Tylenol type meds help.
I HAVE found that being in a warm water pool helps. I have gone through aquatic physical therapy and it did help. After I was done with the therapy, I joined a gym that had the therapy pool. Also, the Arthritis Foundation has classes throughout the country. It might be worth a try.

Good luck and have a pain free day.....
Ronnie (GRANDMAr)

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Lucky you I am allergic to anything with Tylenol, Aspirin or Advil etc. And I have been lucky I can control it with the pool and ice. So far!

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@fiveonred

I am beginning to feel foot paid that I think is due to arthritis which I have in my knees. Anyone had experience with this?

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Yes me in both feet right where you tie your shoe laces. It helped me tremendously so far to buy Hoka bondi rocker shoes. I even wear them in the house. I bought the super hard arch support too. All at REI was the best place to get the right ones. I have been told I need surgery on both feet as I am now bone on bone right where the shoe laces tie. Wearing these has warded off surgery so far. I’m coming to the clinic as I have knee pain, hip and back along with it. Hands have it and just had surgery on left one with a sling in it. Long painful recovery and now the right one is doing it. My joints are a mess…… I am 70.

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@grandmar

Hi
They say the worse the pain, the more you should move.
I have personally found that advice hard to take.
I used to get a prescription dose of ibuprofen with stomach meds mixed in. Sorry I cannot remember the name of the prescription. It worked well except after time, it causes major issues with my stomach. Soon after, I had weight loss surgery and you cannot take any ibuprofen or aspirin type meds. I don't find and strength of Tylenol type meds help.
I HAVE found that being in a warm water pool helps. I have gone through aquatic physical therapy and it did help. After I was done with the therapy, I joined a gym that had the therapy pool. Also, the Arthritis Foundation has classes throughout the country. It might be worth a try.

Good luck and have a pain free day.....
Ronnie (GRANDMAr)

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It is so hard to move due to the pain and I have bone on bone in feet. Whew. Glad I’m coming for a visit!

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@JustinMcClanahan

Hello @howardk,

Thank you for starting a conversation on ankle & knee arthritis. I have some personal experience with these ailments as well. I have had my right knee replaced due to end-stage arthritis and have end-stage arthritis in both of my ankles as well. I have now had my left ankle fused and am postponing doing that with my right ankle as long as I can hold on.

I tried many things over the years. Ankle braces were about the only thing that kind of helped. I also tried Celebrex but didn't see any results from that and ultimately decided to discontinue it. Have you discussed custom ankle braces with your medical provider? There are prosthetics out there that will make custom molds of your ankle and custom fit braces, they help stabilize your ankles and it can help with taking some of the pressure off of your ankles when you are active. I also have hemophilia, meaning my blood does not clot on its own, so I also cannot take ibuprofen. I take tylenol when the pain is really bad, but as you may know tylenol's power is limited. I've learned the best thing for me is listening to my body when the joints are feeling inflamed and to take multiple breaks, and at the end of the day to elevate the joints and ice them.

@howardk, if you don't mind sharing a bit more, what options have been discussed with you? Have you thought about asking about custom braces? Are you also looking at joint surgeries or is your arthritis not yet to that stage?

Jump to this post

Justin, I know you wrote this long ago but I've been thinking about my own arthritis lately, started looking through discussions. I had bilateral spontaneous Achilles tendon ruptures in December from the antibiotic Levofloxacin. I've been wearing boots since the first of 2024, doctor doing the non surgical treatment before moving to surgery. I'm due to have a right knee replacement and a left sub talar joint fusion when I recover from my current catastrophe. At the same time as the ruptures I found I had a DVT in my left leg, so I had to stop Meloxicam to start Elequis. Now the OA in numerous joints is hurting, especially my hands.

All that to ask about custom ankle braces. Do they completely immobilize the ankle so an Achilles tendon can heal? A few years ago I had an internal brace put in my left ankle because I kept rolling it. Everything was torn up. Unfortunately the surgeon didn't notice the sub talar joint, so it went untreated. I get cortisone injections to get me through until I can have surgery. But a good brace might reduce the frequency of the shots in the meantime.

With severe burning neuropathy pain in my feet and ankles anything that has contact with my skin makes the pain worse. A soft OTC ankle brace is out of the question.

And then there's the question of footwear. Have you heard of anything that protects arthritic ankles? And one more thing, have you heard of or found anything that treats arthritis in hands? I put Diclofenac cream on them, which is a short term help. I hope not to have to take Elequis for more than 3 months, so I can get back to Meloxicam (which my doctor prescribed reluctantly because I had bleeding stomach ulcers ten years ago).

I know - a lot of questions. Sorry.

Jim Dickinson

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@jimhd

Justin, I know you wrote this long ago but I've been thinking about my own arthritis lately, started looking through discussions. I had bilateral spontaneous Achilles tendon ruptures in December from the antibiotic Levofloxacin. I've been wearing boots since the first of 2024, doctor doing the non surgical treatment before moving to surgery. I'm due to have a right knee replacement and a left sub talar joint fusion when I recover from my current catastrophe. At the same time as the ruptures I found I had a DVT in my left leg, so I had to stop Meloxicam to start Elequis. Now the OA in numerous joints is hurting, especially my hands.

All that to ask about custom ankle braces. Do they completely immobilize the ankle so an Achilles tendon can heal? A few years ago I had an internal brace put in my left ankle because I kept rolling it. Everything was torn up. Unfortunately the surgeon didn't notice the sub talar joint, so it went untreated. I get cortisone injections to get me through until I can have surgery. But a good brace might reduce the frequency of the shots in the meantime.

With severe burning neuropathy pain in my feet and ankles anything that has contact with my skin makes the pain worse. A soft OTC ankle brace is out of the question.

And then there's the question of footwear. Have you heard of anything that protects arthritic ankles? And one more thing, have you heard of or found anything that treats arthritis in hands? I put Diclofenac cream on them, which is a short term help. I hope not to have to take Elequis for more than 3 months, so I can get back to Meloxicam (which my doctor prescribed reluctantly because I had bleeding stomach ulcers ten years ago).

I know - a lot of questions. Sorry.

Jim Dickinson

Jump to this post

Hi Jim,

Sorry for all you're going through. I'm 69 y/o and have arthritis in my hands (well, everywhere.....). While large joints can be replaced (I've had both knees replaced and my big toes fused), hands are a different story. The space is too small to do any kind of joint replacement that works and fusion isn't practical. Cortisone shots can help.

I have found that by accepting this situation for my hands, they seem better. I realize that's nothing more than a head game, but it helps. I did see a hand specialist and she told me the same thing. As long as it's osteoarthritis and not rheumatoid arthritis, you may be able to live with it. Not a good answer, but better than hoping for something that isn't currently possible.

Be well.

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