← Return to Anyone have neuroendocrine tumor (NETs) of the breast?

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@mir123

I'm sorry you have this rare cancer, as do I. No doctor I encountered had ever seen it clinically. I was told it is treated as "ordinary breast cancer," so I expect yours will be treated according to its grade (how fast moving), stage, and other attributes, such as estrogen positivity etc. Based on this, the oncologist will suggest a course of treatment. Stay in touch and tell us how you are doing. Chemo was highly recommended to me, but in my case it had a low success rate and a high chance of severe damage to vital organs. Also, I have kidney disease, and nephrologist would not sign off on about half of the suggested drugs. Try not to worry too much, if possible, and do bring a trusted friend, spouse, family member to your appointments. Slow down as needed--a few days to consider, a second opinion. Often doctors will really try and rush you, but a small delay for reflection does no harm. Thinking of you.

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Replies to "I'm sorry you have this rare cancer, as do I. No doctor I encountered had ever..."

Thank you, all my best to you. I’m so frustrated no one really knows what to do with me. ❤️