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Epilepsy & Seizures | Last Active: Jan 9 9:21am | Replies (11)

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@tonyde

You need legal advice, there's a strong possibility your son is not receiving proper medical care. Withholding proper medical care and allowing his health to worsen would seem to be cruel and unusual punishment regardless of the crime.

I started having seizures 25 years ago after a car accident, it took 5 years to gain control, they started again 3 years ago. Seizures had 4 levels of classifications when I first started 25 years ago. My original diagnosis was partial complex seizures back then, I refer to the seizures I am not receiving as grand mal seizures, not sure what the proper terms are today.

Only 8% of seizure patients make noise during a seizure, I'm part of that 8%, even screaming a few times (wherever my seizures take me must be terrifying). I had a seizure in the hospital a few years ago, I heard the neurologist tell the nurse, "I would have thought he was faking had I not seen that" she responded, "I heard him all the way down to the nurse's station" followed with "we called in the stroke team". That's when I learned my blood pressure skyrocketed, more than double my normal which is already too high.

It's not unusual for a seizure to cause critically high blood pressure with the ability to damage all of your organs including your heart, brain and lungs and, in a rare case, be life-threatening. It can cause a stroke. I've had several minor strokes affecting my ability to walk and talk for 12 hours or more. Fortunately, I fully recovered. It doesn't sound like your son has fully recovered.

Your son may not be receiving proper medical care because an EEG showed no seizure activity. My understanding is an EEG will confirm a seizure diagnosis only 50% of the time because it requires some level of seizure activity. Subsequent EEG's may never confirm a seizure diagnosis in as many as 10% of patients.

Your son needs and deserves proper medical care.

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Replies to "You need legal advice, there's a strong possibility your son is not receiving proper medical care...."

Thank you for sharing..I took my son to the ER at Mayo clinic..CT scan came back no tumors or bleeding..due to his tremors on his left face..Nuero Dr diagnosed him with Dysotonia ..MRI was done results of that was good and EEG which you already understand most of the time nothing appears there..Nuero Dr says he has generalized siezures..