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Diabetic with no pancreas

Diabetes & Endocrine System | Last Active: Oct 6 7:54pm | Replies (21)

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@cehunt57

I’m going on 50+ years diabetic (Type 1, pancreas transplant, Type 2 plus related complications like gastroparesis). I’m currently using a Dexcom G6 continual glucose monitor (CGM) and an Omnipod 5 insulin pump. I just had a follow up visit with my endocrinologist 2 days ago. We fine tuned a bunch of the settings and I’m hopeful of achieving a greater percentage of time in range with less spikes and lows. I too have experienced what I call a blood sugar rollercoaster (blood sugar 19 - 600+). It is terrible! The CGM graph looks like a mountain range! It is possible to flatten it out. Before all the high tech devices I have now. I had Lantus for long term basal coverage. I found that a split dose of 12 hours and 12 hours did work best for me. I had multiple daily injections using Humalog or Lispro with an insulin : carbohydrate ratio for mealtime bolus. There was also a “sliding scale” for correction of blood sugar that was above range. These things helped me. Can you inquire of your provider about these treatment methods? Do you have a different provider treating your cancer? Can they collaborate for your care?

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Replies to "I’m going on 50+ years diabetic (Type 1, pancreas transplant, Type 2 plus related complications like..."

Oh my, my levels never went over 400. But the roller coaster as you say is horrible I haven’t had a normal day. They keep changing my Lantau to 5 and I drop to 50 at night so back to 3.
Question, how close together can I take my regular insulin and Lantas? My endocrinologist has patients with no pancreas but she has been out. See her next month and I am going to ask about the carbohydrate ratio. I am on a sliding scale of 3 plus.
I am open to any suggestions, all I want to do is lay down!
I am in the process of getting the Dexcom and hopefully go on the pump. Do you feel better on the pump. What a horrible disease hugs