Update from this post…had horrible relapse starting in February …upped prednisone to 5 mg in April but continued downward spiral of pain and swelling of knees and hips …finally in June saw dr and upped prednisone to 20 mg …that brought about immediate results for about a week but then started to flare anyway …middle of July upped Actemra shot to weekly and had immediate improvement …have reduced prednisone to 15 mg and plan to reduce to 10 mg at my next weekly injection …I can now walk more and go up stairs without crippling pain …will start slow 1 mg a week reduction After a week at 10 mg in hopes of getting rid of prednisone totally …I think the Actemra is making this happen …an unusual thing I did get this week though was an outbreak of quarter size very itchy spots made up of small blisters ..10 in all on my legs …hoping ketoderm will cure them…always exciting new hurdles 😵‍💫