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Paget's of nipple and other areas of breast
Breast Cancer | Last Active: Mar 7 10:11am | Replies (23)Comment receiving replies
I had a stage one, invasive ductal tumor removed in September 2023. It was 3 mm in size, no node involvement and clean margins. It actually was completely removed with the biopsy it was so small. Been on AI since. Less than a month ago I noticed nipple on opposite breast receding to areola. No pain or redness then. Now a small fissure which is sore to touch. Waiting to see dermatologist for her opinion and hopefully biopsy. I say this because in December of 2023 I had a ctDNA blood test which showed positive, meaning I have cancer DNA floating around. May be related to this new issue. Had PET scan and looks ok. MRI at end of month. Genetic testing shortly after surgery showed nothing. Another round of waiting!
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Had biopsy done on left breast nipple by dermatologist which fortunately showed only a small fibroma, benign. Whew! mRI done and nothing showed up on either breast. Will have 6 month follow ups, either mammogram or MRI. Had second ctDNA test and was slightly increased ☹️ Not sure what will happen with this information as little information is out there on ctDNA and oncologist not sure how to monitor. Suppose I will keep getting blood tested for some time to see if it relatively stable or spikes which probably would indicate a recurrence and then have PET scan. This is a hard hard journey!