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@earlylonghauler

Hi Ericy, your post resonates with me - very similar to things I have felt and written. My life has changed completely since 2020. Covid does neurological damage and the hippocampus is a target. My initial covid symptom was amnesia (likely a focal seizure). A few weeks later fatigue, nerve pain, brain fog. Doctors had no clue. Then I felt fine. Years later, rapid weight loss, brain fog, and most recently - more serious seizures and now an Epilepsy diagnosis. I’m not the same person. Getting a good clinical team together is important - doctors that believe you, take an interest in whatever strange symptoms you may have, and are keenly motivated to help. It also helps that as we learn more about Covid, doctors are more likely to have seen whatever it is you have before.

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Replies to "Hi Ericy, your post resonates with me - very similar to things I have felt and..."

It’s really hard to get a team together where different disciplines get it. I have neurologists, a pneumologist, psychiatrist, neuropsychologist, cardiologist, and other clinical study doctors. They’re all affiliated with the same university and its Covid program. But I had to assemble the team and coordinate data sharing and communication. It takes effort when some doctors have limited Covid understanding.