← Return to Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
DiscussionDiagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:28pm | Replies (113)Comment receiving replies
Replies to "@marct First of all, I can only tell our story which is very similar. My wife..."
How old is your wife? I'm 55yr old Male and I had a SI resection, primary NET, GB and some lymph nodes removed and I feel much better, no bloating or abdominal pain. I can eat more, exercise regularly and my quality of life has improved since. I ask how old b/c I'm curious about the liver transplant strategy as I also have "innumerable" liver NETS.
@kim1965
Excellent advise!! Being your own, well educated advocate is the best advise! That’s what saved my husbands life 15 years ago when a highly regarded net specialist rejected all forms of treatment and told him to get his affairs in order. Thank God for the education we had given ourselves prior to that or he would not be here now.