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DiscussionHad Shingles shot and now have PMR
Polymyalgia Rheumatica (PMR) | Last Active: Mar 19 12:58pm | Replies (81)Comment receiving replies
Replies to "Hi, I am a physician over the past five years. I’ve had PMR three times and..."
Dear legend, I was fully vacinated for Covid in 2021 with Phizer vaccine. For about 30 years I always received a seasonal flu shot because I worked with the public. September 2022 my PCP gave me my flu shot. By October 1, I was in the ER with a severe case of PMR. I had to go in a wheelchair and my hands were so swollen and painful I was non- functional. My PCP said no more vaccines for you. I am on a slow taper for my Prednisone. Should be off by end of February. Diet is very important for recovery
@hblegen
Hi! I’m on other chat sites. Basically, 6/11/24 first of two shingrix. Within 2 weeks most pain ever. “Local” rheumatologist 2 days/week and one at Mayo initially thought RA/PMR/SeroNeg. Then said no. (Not quite symmetrical). ESR, CRP way up and down. 21+ months and a left shoulder reverse replacement due to deteriorating bones, my body is still racked with pain. Prednisone, methotrexate, Kevzara, Humira did not relieve my pain. Mayo doctor is giving up; saying bye-bye.
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My PMR was triggered by the shingles vaccine last January and my life has not been the same since then. You were very fortunate getting off prednisone so quickly. My rheumatologist also thought I might be able to taper off prednisone quickly with vaccine induced PMR but that has not been the case. I don’t know why the medical profession has been so reluctant to acknowledge the relationship. That doesn’t mean vaccines shouldn’t be given; the actual diseases we are vaccinated against also can cause the same issues or worse.
I’ve continued to get boosters or vaccine for COVID, flu and RSV but refused the second Shingles shot.