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Tired of the gaslighting

Autoimmune Diseases | Last Active: Apr 30 10:33pm | Replies (189)

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@larak

I am thinking of switching to a functional medicine doctor and diving deep into a diet to relieve inflammation and lose weight. I'm also thinking of HRT to help with my CV health and energy levels.

Will it solve all my problems? No. But I, too, am sick of the abuse.

It does not matter how many labs are significantly off. It does not matter how many diagnosed symptoms you accumulate. Doctors do not listen.

Heck, I have my whole genome sequenced and HLA-B is mess, with many feameshift, stop-gained, insertion, & deletion variants, including several known pathological variants for Behcet's. I have a 5.1 cm ascending aortic aneurysm, diagnosed dry eye, mouth lesions (having biopsy this year), joint pain, ANA repeatedly 1:1280, etc. etc.

I've been through 4 rheumatologists and they were all lazy and condescending.

My aneurysm doc is sending me to a rheumatologist who specializes in vasculitis, appt. is in April. That's my last hurrah with rheumatology. That is a specialty that really wants a diagnosis handed to them on a silver platter.

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Replies to "I am thinking of switching to a functional medicine doctor and diving deep into a diet..."

I love the idea of trying a functional medicine doctor for you. When I was in the PRC -pain rehabilitation program, Dr Sletten referred to "Demo Day" from HGTV's Chip and Joanna Gaines Fixer Upper show, and how sometimes we have to look at what we are doing because if it's not working we may have to rip it all down and try to rebuild. As you've experienced and are seeing in this thread, patients get frustrated with doctors and conventional Western medicine and maybe that's where demo day has to come in. If it ain't working, change it! I think most of us are intelligent enough to realize that we're not going to cure ourselves but what we do hope for is some plateau and stability - a way to manage our overall health and well-being -physically, emotionally behaviorally and chemically. Good luck to you, my friend. Have you begun the search yet for a functional medical Dr.?