← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Discussion
Comment receiving replies
@johnbishop

Hello @grandpa4, Welcome to Connect. A lot of us PMR old timers can relate to your journey with PMR. When it comes to PMR, that old quote "the best laid plans of mice and men" always comes out. Each of us are a little different when it comes to tapering but the one thing I think we all have in common is slow and easy wins the race. My rheumatologist suggested a tapering plan with the caveat that I listen to my body and only taper down on my own schedule. He recommended I keep a daily log with my pain level of 0 to 10 along with my how much prednisone I was taking that day. Then when it came to taper if my pain level was too high I would go another week or so to see if it came down. If it did come down, I would taper down to my next lower level. If not I tried to adjust by going up half of my last taper down so as not to go all the way back to the previous dose. My pain threshold for tapering was anything below a 2 but that is subjective for each of us.

Do you keep a daily log of how you feel, new symptoms, etc?

Jump to this post


Replies to "Hello @grandpa4, Welcome to Connect. A lot of us PMR old timers can relate to your..."

I have not kept a log but that is a good Idea. I have an appointment with my Rheumatologist on Mon. At 2.5 MG the pain in my hands is had gotten pretty bad. My shoulders are not hurting anymore .My hips are stiff but I can live with it. At this point I have lots to discuss with the Dr.
Thanks for the info@